Hello Inmates! It's Day 5. What day of the week it is? No idea. I had to go check my phone for this info. I guess it's because there's no point? Where am I going? What appointments or get togethers am I going to? "To the window! To the wall!" Yeah that's about it. In … Continue reading Lockdown Day 5: A message from a friend gives me a different perspective on the lockdown…
It's Day 4 of the lockdown and apparently your body develops a whole other routine! Who am I even? I stay up till early hours of the morning and have developed a massive appetite! How did this happen so quickly? This is my new normal and it's anything but normal! On Saturday hubby and I … Continue reading Lockdown Day 4 : What day is it? What have I become …?Covid birthday party and more…
Yes, I know I have a flare for the dramatics. It's a thing I do. Shakespeare said "all the world's a stage" right? Right. Anyway, the problem for me is that my Rheumatologist upped my immunosuppressents 2 weeks ago. I have been on lockdown since then. Yes, TWO WEEKS ALREADY and now I'm faced with … Continue reading Either this is going to be a breeze or I am going to lose my sh*t and open a Tik Tok account …
As those who know me will know... I always complain that the one thing that works for Lupus is Plasmequine (a.k.a Chloroquine). This is the only solid thing, tried and tested that has helped Lupus patients in 40 years! You might not know this but it is actually an anti-malarial drug. Yes, that's what Lupus … Continue reading Don’t take our Lifesaving Meds! Lupus treatment being used for Covid 19 is already resulting in a shortage!
So today after struggling with a messed up nerve in my mouth for three weeks I had to have a root canal! Yes, on top of all the other crap I was going through I had bad inflammation in my mouth. Insane pain. It got to a point that nothing was working.... and I'm on … Continue reading Corona and Ibuprofen/ Brufen warning!
I went for a doppler power sonar to help with trying to diagnose if I had Rheumatoid Arthritis. I was happy that the entry to the hospital had a screening section where you had to answer questions and Sanatize. They would then give you a sticker. All I could think was right, let's do this. … Continue reading Update! The good, the bad and the ugly
With the world gripped in panic, I thought I'd share some of these masks. Crazy or creative? I don't know but hey they're trying right? The virus is no joke but I always believe in having a laugh. So a little break from the panic and awful news to just have a laugh.... Good luck! … Continue reading Crazy Corona Masks! WTH? 😂
This is turning into a saga. It's like a really bad telenovela! I meant to just post about the diagnosis but now new developments ... It's like a series of Scooby Doo episodes! Pulling off the mask to reveal the culprit. Give me strength. So I finally go to the Neurologist. I'm already a mess … Continue reading Part 2 : The diagnosis…But wait! New developments! Awaiting another diagnosis on a possible new condition!
It's been a while. I keep my blog authentic so when I'm not able to post because I'm going through a difficult time being ill, you won't see posts from me. I want you to experience the real ups and downs. What a rollercoaster this can be. So as my family and friends know when … Continue reading Part 1 of this new journey: Hospital Hell Week
I will do an update when I'm doing better. It was a long week of gruelling tests that took alot out of me. Alot of neurological tests, sleep lab etc. For now I'm focusing on recovering from what I went through. It was not fun it was actually traumatic. For now we await the review … Continue reading Monday Motivation. Finally discharged, pending diagnosis