So what was my Announcement all about?

Yes, I posted that I would be making an announcement. Unfortunately, as is the case with my medical conditions, I've been offline for a while. Battling the brutal effects of the stronger chemo I've been put on. It actually says on WebMD (the go to ūüėā) that it has very adverse side effects....that can last … Continue reading So what was my Announcement all about?

Lupus Awareness Month! Lupus and connective tissue problems.

I have Lupus and Fibromyalgia and both have caused me problems with my connective tissue. Think of the sinew over meat. It's that stuff. When that contracts it makes your muscles contract. The pain is beyond excruciating. It takes alot of work to keep it in check. This is why I go for physio every … Continue reading Lupus Awareness Month! Lupus and connective tissue problems.

Don’t take our Lifesaving Meds! Lupus treatment being used for Covid 19 is already resulting in a shortage!

As those who know me will know... I always complain that the one thing that works for Lupus is Plasmequine (a.k.a Chloroquine). This is the only solid thing, tried and tested that has helped Lupus patients in 40 years! You might not know this but it is actually an anti-malarial drug. Yes, that's what Lupus … Continue reading Don’t take our Lifesaving Meds! Lupus treatment being used for Covid 19 is already resulting in a shortage!

Update! The good, the bad and the ugly

I went for a doppler power sonar to help with trying to diagnose if I had Rheumatoid Arthritis. I was happy that the entry to the hospital had a screening section where you had to answer questions and Sanatize. They would then give you a sticker. All I could think was right, let's do this. … Continue reading Update! The good, the bad and the ugly

Hyperbaric Chamber (Oxygen Tank) review

I'm here to be a guinea pig. We are desperate for relief and will try anything. If you've tried something new let me know so I can feature it here for all us chronic folk. So I've seen these hyperbaric chambers before. Basically oxygen therapy chambers and found them very intriguing. Where I went wrong … Continue reading Hyperbaric Chamber (Oxygen Tank) review

So guess where I was last night. No prizes for winning. My body is giving up on my behalf..

Here's a hint... I might as well set up a bed for myself here... make it comfy I'm tired. My body is tired and my mind is tired. Since Saturday last week, so 10 days of unrelenting pain. I'm not able to function even through copious amounts of medication. When the E.R doctor saw me … Continue reading So guess where I was last night. No prizes for winning. My body is giving up on my behalf..

So your Fibromyalgia is flaring and kicking your butt. What now? Part 2: Dealing with a Fibromyalgia flare.

When symptoms temporarily increase in number or intensity, it is called a¬†flare¬†or¬†flare-up.¬†Flare-ups can happen without warning and are mostly likely to occur if a person with¬†fibromyalgia¬†is stressed or under a lot of pressure. A¬†flare-up can last anywhere from a few days to weeks at a time. http://www.medicalnewstoday.com¬† Right now I am the right person to … Continue reading So your Fibromyalgia is flaring and kicking your butt. What now? Part 2: Dealing with a Fibromyalgia flare.

“You won’t be in pain if you learn to cope with things properly”. No. That’s a lie. That is not how Fibromyalgia works. Let me explain it to you.

Part 1 of this complicated disease There is so much out there about fibromyalgia. I was first diagnosed 13 years ago and totally resisted the diagnosis. It didn't help that I immediately developed gruesome side effects from the medication for the fibromyalgia. I told myself that it was a sign. I was not going to … Continue reading “You won’t be in pain if you learn to cope with things properly”. No. That’s a lie. That is not how Fibromyalgia works. Let me explain it to you.

Labelled Disabled. The Struggle.

More than 18 months ago I went on to temporary disability. The hope was that during that time I would get better enough to resume employment. I worked hard at it. I even tried following the crazy regimen of medication the one specialist had me on. I tried. During this time I would see an … Continue reading Labelled Disabled. The Struggle.

I didn’t make it. So let’s rather talk about our support systems.

I started writing this while waiting to be booked into hospital. Yes, you read right. Hospital. So much for not going to hospital in the first month of the year! I've just had to go through some back and forth with medical staff/nurses/admin at the Doctors' surgical area and rooms. So apparently the fusions are … Continue reading I didn’t make it. So let’s rather talk about our support systems.