Frustration, anger, sadness, anxiety, grief, a sense of being lost. These are just some of the feelings I am feeling right now. The best way I know how to deal with it, is to write about it. I apologise ahead of time if this upsets any of you. I need to figure out my “new … Continue reading I’m Struggling. I’m Lost.
I have Lupus and Fibromyalgia and both have caused me problems with my connective tissue. Think of the sinew over meat. It's that stuff. When that contracts it makes your muscles contract. The pain is beyond excruciating. It takes alot of work to keep it in check. This is why I go for physio every … Continue reading Lupus Awareness Month! Lupus and connective tissue problems.
I went for a doppler power sonar to help with trying to diagnose if I had Rheumatoid Arthritis. I was happy that the entry to the hospital had a screening section where you had to answer questions and Sanatize. They would then give you a sticker. All I could think was right, let's do this. … Continue reading Update! The good, the bad and the ugly
This is turning into a saga. It's like a really bad telenovela! I meant to just post about the diagnosis but now new developments ... It's like a series of Scooby Doo episodes! Pulling off the mask to reveal the culprit. Give me strength. So I finally go to the Neurologist. I'm already a mess … Continue reading Part 2 : The diagnosis…But wait! New developments! Awaiting another diagnosis on a possible new condition!
I'm here to be a guinea pig. We are desperate for relief and will try anything. If you've tried something new let me know so I can feature it here for all us chronic folk. So I've seen these hyperbaric chambers before. Basically oxygen therapy chambers and found them very intriguing. Where I went wrong … Continue reading Hyperbaric Chamber (Oxygen Tank) review
I have been having a pain flare for 11 days now. 11 Days of excruciating pain. It literally robs you of days. Even weeks. It has literally robbed me of 11 days because I haven't gotten nearly enough done that I wanted to during this time. My life has been on pause. Everything has to … Continue reading I am so over with this. Just done. There is a silver lining though and a secret I want to share with you.
When symptoms temporarily increase in number or intensity, it is called a flare or flare-up. Flare-ups can happen without warning and are mostly likely to occur if a person with fibromyalgia is stressed or under a lot of pressure. A flare-up can last anywhere from a few days to weeks at a time. http://www.medicalnewstoday.com Right now I am the right person to … Continue reading So your Fibromyalgia is flaring and kicking your butt. What now? Part 2: Dealing with a Fibromyalgia flare.
I had starting to feel stressed because of an extremely stressful situation. This time however I approached it differently. I have to take this time to say that I really did make a valiant attempt at taking a back seat. It was not easy at all ass this was something I would have been first … Continue reading Confession time. What you didn’t know was really going on this week.
Part 1 of this complicated disease There is so much out there about fibromyalgia. I was first diagnosed 13 years ago and totally resisted the diagnosis. It didn't help that I immediately developed gruesome side effects from the medication for the fibromyalgia. I told myself that it was a sign. I was not going to … Continue reading “You won’t be in pain if you learn to cope with things properly”. No. That’s a lie. That is not how Fibromyalgia works. Let me explain it to you.
More than 18 months ago I went on to temporary disability. The hope was that during that time I would get better enough to resume employment. I worked hard at it. I even tried following the crazy regimen of medication the one specialist had me on. I tried. During this time I would see an … Continue reading Labelled Disabled. The Struggle.