As those who know me will know... I always complain that the one thing that works for Lupus is Plasmequine (a.k.a Chloroquine). This is the only solid thing, tried and tested that has helped Lupus patients in 40 years! You might not know this but it is actually an anti-malarial drug. Yes, that's what Lupus … Continue reading Don’t take our Lifesaving Meds! Lupus treatment being used for Covid 19 is already resulting in a shortage!
Here's a hint... I might as well set up a bed for myself here... make it comfy I'm tired. My body is tired and my mind is tired. Since Saturday last week, so 10 days of unrelenting pain. I'm not able to function even through copious amounts of medication. When the E.R doctor saw me … Continue reading So guess where I was last night. No prizes for winning. My body is giving up on my behalf..
Part 1 of this complicated disease There is so much out there about fibromyalgia. I was first diagnosed 13 years ago and totally resisted the diagnosis. It didn't help that I immediately developed gruesome side effects from the medication for the fibromyalgia. I told myself that it was a sign. I was not going to … Continue reading “You won’t be in pain if you learn to cope with things properly”. No. That’s a lie. That is not how Fibromyalgia works. Let me explain it to you.
More than 18 months ago I went on to temporary disability. The hope was that during that time I would get better enough to resume employment. I worked hard at it. I even tried following the crazy regimen of medication the one specialist had me on. I tried. During this time I would see an … Continue reading Labelled Disabled. The Struggle.
I started writing this while waiting to be booked into hospital. Yes, you read right. Hospital. So much for not going to hospital in the first month of the year! I've just had to go through some back and forth with medical staff/nurses/admin at the Doctors' surgical area and rooms. So apparently the fusions are … Continue reading I didn’t make it. So let’s rather talk about our support systems.
So today saw me going to my rheumatologist for the first time this year. It was an emergency appointment because I had been flaring for most of December. I wished it was just a 'let's touch base to do a check up and a look at the meds you're on' kind of appointment. After the … Continue reading I choked back my tears. A quick update on my appointment…
So the holidays are over and everyone is going back to school and work. I am going back to let's fix Tracey. It literally is a full time job. I started the new year with a Lupus flare. In my previous post I said that I pitched up like a vagrant in a gown to … Continue reading What fresh hell awaits me??
The aim of this blog was always to create awareness about Lupus. Here are some quick infographics about Lupus I've experienced this first hand. #truestory I am currently on disability. I will be doing a blog about the financial strain of Lupus in the next few weeks. Spoiler alert. It's a horror movie. Lupus is … Continue reading Some quick facts and stats about Lupus
Alot of people feel that 2019 was a crappy year. It had some pretty crappy, soul wrenching, internal screaming and extreme frustration amongst other things for me. It has also had some good bits. It was definitely a year of growth for me. I finally came to the realisation that can be best summed up … Continue reading I’m back! Happy New Year
We've held onto some traditions that span 50 years. One of these is the little ones handing out gifts. A big hoo ha is made about the mound of gifts. The mound of gifts are lots of gifts big and small wrapped for them. We do adult gifts but watching the astonishment of the little … Continue reading Having yourself a merry little festive season?