Either this is going to be a breeze or I am going to lose my sh*t and open a Tik Tok account …

Yes, I know I have a flare for the dramatics. It’s a thing I do. Shakespeare said “all the world’s a stage” right? Right. Anyway, the problem for me is that my Rheumatologist upped my immunosuppressents 2 weeks ago. I have been on lockdown since then. Yes, TWO WEEKS ALREADY and now I’m faced with…… Continue reading Either this is going to be a breeze or I am going to lose my sh*t and open a Tik Tok account …

Don’t take our Lifesaving Meds! Lupus treatment being used for Covid 19 is already resulting in a shortage!

As those who know me will know… I always complain that the one thing that works for Lupus is Plasmequine (a.k.a Chloroquine). This is the only solid thing, tried and tested that has helped Lupus patients in 40 years! You might not know this but it is actually an anti-malarial drug. Yes, that’s what Lupus…… Continue reading Don’t take our Lifesaving Meds! Lupus treatment being used for Covid 19 is already resulting in a shortage!

Corona and Ibuprofen/ Brufen warning!

So today after struggling with a messed up nerve in my mouth for three weeks I had to have a root canal! Yes, on top of all the other crap I was going through I had bad inflammation in my mouth. Insane pain. It got to a point that nothing was working…. and I’m on…… Continue reading Corona and Ibuprofen/ Brufen warning!

Update! The good, the bad and the ugly

I went for a doppler power sonar to help with trying to diagnose if I had Rheumatoid Arthritis. I was happy that the entry to the hospital had a screening section where you had to answer questions and Sanatize. They would then give you a sticker. All I could think was right, let’s do this.…… Continue reading Update! The good, the bad and the ugly

Part 2 : The diagnosis…But wait! New developments! Awaiting another diagnosis on a possible new condition!

This is turning into a saga. It’s like a really bad telenovela! I meant to just post about the diagnosis but now new developments … It’s like a series of Scooby Doo episodes! Pulling off the mask to reveal the culprit. Give me strength. So I finally go to the Neurologist. I’m already a mess…… Continue reading Part 2 : The diagnosis…But wait! New developments! Awaiting another diagnosis on a possible new condition!

Part 1 of this new journey: Hospital Hell Week

It’s been a while. I keep my blog authentic so when I’m not able to post because I’m going through a difficult time being ill, you won’t see posts from me. I want you to experience the real ups and downs. What a rollercoaster this can be. So as my family and friends know when…… Continue reading Part 1 of this new journey: Hospital Hell Week