Part 1 of this new journey: Hospital Hell Week

It’s been a while. I keep my blog authentic so when I’m not able to post because I’m going through a difficult time being ill, you won’t see posts from me. I want you to experience the real ups and downs. What a rollercoaster this can be. So as my family and friends know when…… Continue reading Part 1 of this new journey: Hospital Hell Week

I am so over with this. Just done. There is a silver lining though and a secret I want to share with you.

I have been having a pain flare for 11 days now. 11 Days of excruciating pain. It literally robs you of days. Even weeks. It has literally robbed me of 11 days because I haven’t gotten nearly enough done that I wanted to during this time. My life has been on pause. Everything has to…… Continue reading I am so over with this. Just done. There is a silver lining though and a secret I want to share with you.

So guess where I was last night. No prizes for winning. My body is giving up on my behalf..

Here’s a hint… I might as well set up a bed for myself here… make it comfy I’m tired. My body is tired and my mind is tired. Since Saturday last week, so 10 days of unrelenting pain. I’m not able to function even through copious amounts of medication. When the E.R doctor saw me…… Continue reading So guess where I was last night. No prizes for winning. My body is giving up on my behalf..

Confession time. What you didn’t know was really going on this week.

I had starting to feel stressed because of an extremely stressful situation. This time however I approached it differently. I have to take this time to say that I really did make a valiant attempt at taking a back seat. It was not easy at all ass this was something I would have been first…… Continue reading Confession time. What you didn’t know was really going on this week.

“You won’t be in pain if you learn to cope with things properly”. No. That’s a lie. That is not how Fibromyalgia works. Let me explain it to you.

Part 1 of this complicated disease There is so much out there about fibromyalgia. I was first diagnosed 13 years ago and totally resisted the diagnosis. It didn’t help that I immediately developed gruesome side effects from the medication for the fibromyalgia. I told myself that it was a sign. I was not going to…… Continue reading “You won’t be in pain if you learn to cope with things properly”. No. That’s a lie. That is not how Fibromyalgia works. Let me explain it to you.

Labelled Disabled. The Struggle.

More than 18 months ago I went on to temporary disability. The hope was that during that time I would get better enough to resume employment. I worked hard at it. I even tried following the crazy regimen of medication the one specialist had me on. I tried. During this time I would see an…… Continue reading Labelled Disabled. The Struggle.

I choked back my tears. A quick update on my appointment…

So today saw me going to my rheumatologist for the first time this year. It was an emergency appointment because I had been flaring for most of December. I wished it was just a ‘let’s touch base to do a check up and a look at the meds you’re on’ kind of appointment. After the…… Continue reading I choked back my tears. A quick update on my appointment…