Part 1 of this complicated disease There is so much out there about fibromyalgia. I was first diagnosed 13 years ago and totally resisted the diagnosis. It didn't help that I immediately developed gruesome side effects from the medication for the fibromyalgia. I told myself that it was a sign. I was not going to … Continue reading “You won’t be in pain if you learn to cope with things properly”. No. That’s a lie. That is not how Fibromyalgia works. Let me explain it to you.
More than 18 months ago I went on to temporary disability. The hope was that during that time I would get better enough to resume employment. I worked hard at it. I even tried following the crazy regimen of medication the one specialist had me on. I tried. During this time I would see an … Continue reading Labelled Disabled. The Struggle.
So today saw me going to my rheumatologist for the first time this year. It was an emergency appointment because I had been flaring for most of December. I wished it was just a 'let's touch base to do a check up and a look at the meds you're on' kind of appointment. After the … Continue reading I choked back my tears. A quick update on my appointment…
A little collection that resonated with me on my #mefirst journey for 2020 I will be posting some of these more regularly. Just some things that have spoken to the #mefirst movement. Print them out if it resonates with you or if it's something you need to remind yourself of. Put it on the fridge, … Continue reading Me First. Inspiration for the New Year.
Alot of people feel that 2019 was a crappy year. It had some pretty crappy, soul wrenching, internal screaming and extreme frustration amongst other things for me. It has also had some good bits. It was definitely a year of growth for me. I finally came to the realisation that can be best summed up … Continue reading I’m back! Happy New Year
We've held onto some traditions that span 50 years. One of these is the little ones handing out gifts. A big hoo ha is made about the mound of gifts. The mound of gifts are lots of gifts big and small wrapped for them. We do adult gifts but watching the astonishment of the little … Continue reading Having yourself a merry little festive season?
I have found through comments and messages how many people need someone who understands their pain. Some are newly diagnosed people. I happily chat to them all. Not only does it help them but it helps me too and it feels good to help in a small way. Some people don't want to leave comments … Continue reading Please talk to me
I loved the sun and the sun loved me. We had a beautiful relationship all my life. Living in Cape Town there were innumerable visits to the beach. There is nothing like a good swim or just marinating in the sea or a pool. I loved tanning. Getting that golden, olive skin was fabulous for … Continue reading The end of a love affair..
The festive season has always been a magical time for me. There is nothing like Christmas. I relish in all things Christmas... Even Boney M! Yes... I start counting down the months. People say that Christmas has just become commercial and the spirit of it has been lost. That may be for some people but … Continue reading Surviving the Festive Season for the chronically ill…
A little while back I faced something that for a while brought me to my knees. You see I had developed PTSD from a protracted period of time that was my own personal horror. It was absolutely awful. It caused me extreme anxiety, mental stress, panic attacks, depression, caused my Lupus and Fibromyalgia to almost … Continue reading And still I rise…
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