More than 18 months ago I went on to temporary disability. The hope was that during that time I would get better enough to resume employment. I worked hard at it. I even tried following the crazy regimen of medication the one specialist had me on. I tried. During this time I would see an … Continue reading Labelled Disabled. The Struggle.
I started writing this while waiting to be booked into hospital. Yes, you read right. Hospital. So much for not going to hospital in the first month of the year! I've just had to go through some back and forth with medical staff/nurses/admin at the Doctors' surgical area and rooms. So apparently the fusions are … Continue reading I didn’t make it. So let’s rather talk about our support systems.
So today saw me going to my rheumatologist for the first time this year. It was an emergency appointment because I had been flaring for most of December. I wished it was just a 'let's touch base to do a check up and a look at the meds you're on' kind of appointment. After the … Continue reading I choked back my tears. A quick update on my appointment…
So the holidays are over and everyone is going back to school and work. I am going back to let's fix Tracey. It literally is a full time job. I started the new year with a Lupus flare. In my previous post I said that I pitched up like a vagrant in a gown to … Continue reading What fresh hell awaits me??
The aim of this blog was always to create awareness about Lupus. Here are some quick infographics about Lupus I've experienced this first hand. #truestory I am currently on disability. I will be doing a blog about the financial strain of Lupus in the next few weeks. Spoiler alert. It's a horror movie. Lupus is … Continue reading Some quick facts and stats about Lupus
A little collection that resonated with me on my #mefirst journey for 2020 I will be posting some of these more regularly. Just some things that have spoken to the #mefirst movement. Print them out if it resonates with you or if it's something you need to remind yourself of. Put it on the fridge, … Continue reading Me First. Inspiration for the New Year.
Alot of people feel that 2019 was a crappy year. It had some pretty crappy, soul wrenching, internal screaming and extreme frustration amongst other things for me. It has also had some good bits. It was definitely a year of growth for me. I finally came to the realisation that can be best summed up … Continue reading I’m back! Happy New Year
We've held onto some traditions that span 50 years. One of these is the little ones handing out gifts. A big hoo ha is made about the mound of gifts. The mound of gifts are lots of gifts big and small wrapped for them. We do adult gifts but watching the astonishment of the little … Continue reading Having yourself a merry little festive season?
I have found through comments and messages how many people need someone who understands their pain. Some are newly diagnosed people. I happily chat to them all. Not only does it help them but it helps me too and it feels good to help in a small way. Some people don't want to leave comments … Continue reading Please talk to me
I loved the sun and the sun loved me. We had a beautiful relationship all my life. Living in Cape Town there were innumerable visits to the beach. There is nothing like a good swim or just marinating in the sea or a pool. I loved tanning. Getting that golden, olive skin was fabulous for … Continue reading The end of a love affair..
Tracey's World , Discover 